Here’s one of my latest articles from RheumatoidArthritis.net, if you’re interested. It’s a bit of a sad one, unfortunately. But I’m happy to say that I’ve met some wonderful new friends since this was written!
“Helpful or Hurtful?”
I find the older one gets, it’s harder and harder to make friends. Especially good friends. Making new friends and nurturing good relationships while having a chronic illness is even harder, I would argue. But not impossible!
My new RA Facebook page, “Inflamed: Living with Rheumatoid Arthritis,” has 99 “likes” now, which is exciting. But come on, people! JUST ONE MORE TO REACH 100!
ONE more…anybody? :)
So I just got an email from someone at ABC News about an arthritis Twitter chat happening TOMORROW with moderator Dr. Richard Besser, ABC’s chief health and medical editor. ABC News is looking for people to discuss all aspects of arthritis: symptoms, treatment, etc. And they want to hear from researchers, clinicians, bloggers, and patients.
Tuesday, July 21st
1-2 p.m., ET
Chat hashtag: #abcDRBchat
Here’s also a link explaining more about how to join the chat: Dr. Besser’s Live Twitter Chat.
**The video on the link isn’t about the arthritis chat specifically. But the instructions of how to join one of Dr. Besser’s chats is explained below the video. You can use that information to join the arthritis chat tomorrow.
Please join the chat if you’re interested and pass along the info to others. I’ll be there, tweeting! Look for me at @aclundberg
So this is exciting–I just created a Facebook page for “Inflamed!” Please “like” it if you’re interested and feel free to share it with others (so I feel like I have more than two friends, ha). I’m really looking forward to connecting with more people in the RA and chronic pain and illness communities via Facebook and sharing dialogue/stories/photos/tips/etc.
Check it out!
So this is what it looks like when you run out of 5 mg tablets of prednisone. Luckily I still had enough 1mg pills, but this is not really my preferred way of doing things. Sometimes it’s just hard to stay on top of all of this stuff, you know? Since this photo was taken, I did manage to get a refill for the 5’s. Whew.
Here is a photo of last Friday’s very swollen ankles–especially the right one. Ouch. I have to say, the heat and humidity of summer in NYC is quickly becoming my enemy. Sitting at a desk all day at a temp job doesn’t help the swollen feet/ankles problem either. Luckily there is this wonderful little invention called ICE. After sitting on this step for a few minutes after work, dreading the rush hour subway ride back to Brooklyn from crazy Midtown, I did finally hoist myself up and limp down into the subway. As soon as I got home you can be sure that I strapped my ice pack onto that annoying ankle. I posted this photo on Facebook not long after I took it, complaining in a half-joking manner about how much I missed my pre-RA cute and skinny ankles (ankle bones even visible back then!). My cousin wrote back, “At least you’re wearing cute pants!” Yes, that’s true. Cute pants do help. Whatever makes things a little bit better, right?
So have a great day, stay cool, and wear some cute pants! Hang in there, everybody. Summer can be tough.
For a while I was trying to cross-post some of the articles I’ve written for Rheumatoidarthritis.net but I realize I haven’t done that lately. So, if you’re interested, here’s a fairly recent one that I like:
“JRA vs RA: Caught in the Lonely Gap”
It’s about being diagnosed with RA at age 18, and sort of teetering on the edge of being a child or adult patient and the issues that came with that. Loneliness is a major “side effect” of having this often misunderstood disease, and I believe it’s even worse when you’re young and living with it.