I just posted this all over my social media pages yesterday because I love it! Having RA and an invisible illness, this statement really resonates with me. I often struggle with feeling “lazy” (and then guilty) just trying to make it through each day living with this exhausting disease. I’m NOT lazy, though. None of us are. We’re doing the best we can while living with constant, debilitating pain. That should be enough.
This is happening tonight! Very soon, actually. Join us on Twitter in about 30 minutes if you can! We’ll be chatting about making decisions about treatments, preparing for doctor appointments, and getting involved in healthcare policy work.
My Twitter handle is @aclundberg (if you don’t already know!). See you online soon!
Once again I can’t believe how long it’s been since I posted on here and how fast the time is speeding by. Can everything slow down a bit, please? Even though I haven’t been posting on this blog that much lately, I’m still keeping busy updating my RA Facebook page–“Inflamed: Living with Rheumatoid Arthritis” (like this blog)–and writing for RheumatoidArthritis.net. If you’re on Facebook, please check out and “like” my page! I’d love to have you there. I do plan to start posting a lot more on this blog, too.
In other news, I started another new biologic medication this spring, Rituxan, and my rheumatologist and I are now waiting to see if it’s going to work. I really hope it does because I’m running out of biologic options–which is worrying. I’m also desperate to finally get off of prednisone (and stay off it) after taking it regularly for about three years.
Here’s a recent article I wrote about starting Rituxan for RheumatoidArthritis.net: “Rituxan Ready?”
In exciting/wonderful news, I’ve recently lost about 9 lbs! This makes me so happy and relieved because I feel like I’ve been trying to lose weight forever, and nothing seemed to be working. I’m glad to find out that my body and metabolism isn’t totally broken/defective. Whew.
How’s your summer going? How’s your RA? The heat and humidity drive me crazy and make my RA (especially swelling) a lot worse. If this also happens to you, I hope you can find a way to stay cool and comfortable right now. I’m sick of breathing in central air conditioning day after day, but I’d rather do that than be miserable and in worse pain.
I really need a relaxing beach vacation, I’ve decided.
Happy April! It’s APRIL already? How did this happen? Life moves too fast sometimes (when you’re busy running to medical appointments every other day, ha).
Well anyway, I’m happy that the weather is starting to get nicer and that Spring is approaching (hopefully). I’m also happy to be starting this little 30-day project for the month of April: 30 Days with RA.
I wrote an article about it recently for RheumatoidArthritis.net (the link above), which can give you a better, more-detailed explanation of the project, if you’re interested.
I know I haven’t updated this blog in seemingly forever. Sincere apologies (I’m embarrassed about this)! 2016 was one of the most challenging years I’ve ever experienced, I’d argue, and it used up a lot of my time, energy, and health. I know I’m being vague here, but I’ll explain more in following posts. I’m really glad that a new year is finally here and I hope it will be happy and healthy for everyone!
That said, here’s a recently published article of mine on rheumatoidarthritis.net about the issue of rising and unaffordable out-of-pocket costs for people who currently have health insurance. I know I’m not alone is having to deal with this issue.
I’ve lived most of my adult life being “dangerously uncovered” even while having health insurance. I know that the fate of our country’s health insurance is on shaky ground right now; it will be interesting (and hopefully not alarming) to see what happens in the near future with the Affordable Care Act and the Trump administration.
Yesterday I had my first iron IV infusion since last December because my hematology labs are still abnormal; my hemoglobin is 10-something. I’ve been dealing with anemia or borderline anemia ever since my RA diagnosis 18 years ago, I think. During all of those years I knew my anemia was somehow related to RA, but it’s not until just recently that I started doing some research on it.