January 12, 2014
So I’m back on prednisone, which is annoying. Right now I’m taking 10 mg, but I was taking 15 mg for a couple weeks. About a month ago a pretty bad flare-up started in both feet and ankles–especially the right foot and ankle. Swelling and terrible, throbbing stabbing pain. I’ve been trying hard to resist taking steroids because of their nasty side effects, and because I’ve been trying very hard to lose weight. But, once again I felt I had no other choice than to take prednisone temporarily until the flare-up is gone. The drug has been helping, which is great, but it’s also been affecting my moods and causing me to have a raging, ravishing appetite. I want to stuff my face with every carb I see, basically. This is frustrating and depressing.
I wrote more about this in a blog post for RheumatoidArthritis.net which hasn’t been published yet (soon, hopefully). In it I ask for tips and suggestions about how to cope with the side effects of prednisone. How can I control my appetite better while taking this wonderful yet awful drug? I’ve been trying to drink a lot of water and tea which is helping, sort of. I’m not sure what else to do other than, yeah, taping my mouth shut. But when a pasta/bread/sugar/chips craving pops up, I’m not sure if I could stop myself from ripping it off anyway. Lock me in a closet instead? Chop off my hands? Joking aside, those aren’t realistic options, of course. Anybody have any good ideas? Please tell me soon, before I clean out the fridge…again.
September 11, 2012
It’s getting to be mid-September already and the weather has been cooler and less humid. However today it was a bizarrely balmy 95 degrees. What? Crazy Minnesota weather, I guess. Fall is my favorite time of year anyway, but I love it even more because the drop in temperature and humidity makes my body and aching joints feel so much better – especially my stubborn right ankle. Since returning from my trip to Europe a month ago, I admit I’ve been having trouble staying energized and motivated to get my life together and to get back on track with health stuff (diet, exercise, weight loss, doctor appointments, ankle). However, I did go on a long bike ride around Palmer Lake a couple days ago – twice around the trail! So that’s about eight miles total. My hardcore bicycling friends would probably find that distance rather wimpy, but it was the first time I ever did that, so I was pretty happy and proud. But, um, I haven’t been on my bike since then. Er. TOMORROW! I just can’t ride my bike or do any kind of exercise in 90 degree heat, and I think that’s understandable.
July 14, 2012
I received some wonderful news today when I went to my doctor appointment –
I’VE LOST SEVEN POUNDS!!!
Incredible! Especially since I’m currently taking 15 mg of prednisone. Wow. I’m beyond happy about this. And, if I keep doing what I’ve been doing, I should continue to lose more weight (says my doctor). The last time I was weighed there was about three weeks ago. I’m so ecstatic and relieved that my “dieting” and tracking calories is finally starting to pay off. Maybe my metabolism isn’t dead after all?
Well, I just wanted to write a quick post to share with you all my good news. I’m going up north early tomorrow morning for an annual family event and I’m really looking forward to that. However I know there will be a lot of bad food temptations there this weekend and I’ll have to work extra hard to control myself. But I can do it, right? The temperature is also supposed to be in the 90s with high humidity again. Ugh. Maybe it will be too hot to eat. Ha.
July 7, 2012
I can’t believe it’s July already; so many things have been happening – good and bad, as usual. I’ll get the bad out of the way first, I suppose. With great frustration, I’m back on prednisone again because my right foot (toes, ball of my foot) has been flaring up pretty bad for the last 2-3 weeks. It’s definitely swollen and my toes hurt and are tender to the touch. My right ankle has also been worse, so basically I just want to chop off my entire right foot starting at the ankle. For the past month I’ve been working so hard on improving my diet and tracking calories in order to lose weight, and being back on prednisone is making this even more of an uphill battle. I’m simultaneously really angry and depressed about it. And about the fact that I don’t seem to have lost one single pound yet, despite drastic calorie cutting and an increase in my bike riding. I don’t know what to do except keep on with it and try to have patience. I did make an appointment to see an endocrinologist at the University of Minnesota Medical Center’s Weight Management Clinic. I have to wait FOREVER to get in to see the doctor though. But once I get in for my appointment I really hope someone can help me. Doing all of this work with no results is really disheartening. I think my metabolism is dead.
May 28, 2012
Happy Memorial Day! Or, Happy Memorial Day weekend! I hope you’re all having a lovely weekend. Mine has been kind of a blur when I stop to think about it. What did I do anyway? Yesterday I went with my parents to visit my grandparents who are buried at Fort Snelling National Cemetery, as well as my aunt at Lakewood Cemetery and my other grandparents at Crystal Lake Cemetery in Minneapolis. I don’t go to cemeteries that often but whenever I do, I’m always glad I went. I love how peaceful they are and how they give you a chance to stop and really remember those you love and the part they played in your life. It’s sad, but comforting as well, I think.
We don’t get out to Fort Snelling that often because it’s kind of out of the way, but I was really glad we went. I still miss all of my grandparents very much; I think I actually miss them more as time passes. I especially miss Nana and Papa, who we visited at Fort Snelling yesterday. My grandma, “Nana,” suffered terribly from rheumatoid arthritis herself until her death. She was such a strong woman though, in so many ways. She always wanted to do things and go places and keep learning in life despite being in so much pain and increasingly disabled from the RA. She also always encouraged me and the rest of her grandchildren to live the same way and to not take life for granted. “Get your education!” she always said. Even though she used to drive me crazy sometimes (she was an opinionated Italian from New Jersey), I admire her immensely. She was her own independent person and most importantly, she was a loving, caring woman who selflessly gave so much to those she loved. All of the work I do to support funding for arthritis research, arthritis advocacy, and arthritis awareness I do not only for myself and the friends I know who also have the disease, but I do it for my grandma. I grew up watching her suffer so much from RA, yet she didn’t let it drag her down. She deserved to have a pain-free life, as do so many others living with the disease today.
February 4, 2012
A lot has been going on lately with my RA and I really haven’t wanted to talk or write about it. But, I suppose I should give some sort of an update. I’m still on the evil prednisone, but I’m starting to taper down as of today. I saw my rheumatologist last week and he increased the dose to 20 mg (I think I was on 10 for a week or so) for a week and then told me to call him, which I did yesterday. My flare-up has definitely improved since starting the prednisone again but I’m still having pain in both ankles. After speaking with my doctor’s nurse yesterday afternoon, she relayed the message that I’m supposed to start tapering down to 15 mg for four days, then 10 mg for four days, then call the office again. She said that since I haven’t seen a lot of improvement increasing to 20 mg that I should start to taper down. That’s certainly fine with me – I hate being on the stuff. However I’m willing to put up with prednisone’s nasty side effects or just about anything else to make the flare-up and pain go away. My Remicade I.V. infusion was also last Friday so hopefully that will start to kick in.
January 18, 2012
Wow I haven’t posted in nearly two months – sorry for that! Things have been crazy and busy and…challenging. I’m still recovering from my ankle surgery in October and I’ve actually been suffering through a pretty bad flare-up for the last 2-3 weeks. BOTH ankles have been really painful making it difficult to walk or be on my feet much. My hands and wrists have also been bothering me during this time, so I’m fairly confident it’s the RA flaring up and not something else. But who knows. My next Remicade infusion is Jan. 27th so hopefully that will help get rid of it. I also finally managed to speak with my rheumatologist’s nurse today and she told me that my doctor wants me to go on prednisone again for the next couple weeks until I see him on Jan. 26th. Great, PREDNISONE. I’ve been trying so hard to stay off this drug; I haven’t taken it since August. Before that I was able to be off of it for an entire year before a bad flare-up forced me to go back on it again. The thought of taking it now is very depressing and makes me feel anxious and kind of sick inside. But what can I do? The pain and swelling in my ankles is driving me crazy – it can’t go on like this.