Just Say No?

bwsteroids
Self-portrait, circa 2012

If only it were that easy to “just say no” to bread, pasta, bagels, donuts, pastries, sweets, SUGAR–all of the delicious carbs that steroid medication (prednisone) makes you crave.

If only I could “just say no” to my doctor when he advises that I increase my prednisone dosage (once again) to help get a flare-up under control.

The prednisone/steroid battle is a tough one, as many of you already know, because despite its nasty side effects, it’s hard to say “no” to a treatment that is very effective and fast at reducing inflammation and pain.

Continue reading

Meds, oops

1mgsSo this is what it looks like when you run out of 5 mg tablets of prednisone. Luckily I still had enough 1mg pills, but this is not really my preferred way of doing things. Sometimes it’s just hard to stay on top of all of this stuff, you know? Since this photo was taken, I did manage to get a refill for the 5’s. Whew.

False alarm/gastritis

Well, maybe I shouldn’t have said something so soon. Sadly and frustratingly, I’m back on prednisone–5 mg. My right foot and ankle are flaring up again (seriously, what is WRONG with THAT foot and ankle?!). I see my rheumatologist on Thursday so we’ll see what he says about it.

And in other painful health news, I’ve been battling a bad case of gastritis (I think) for over a week. Thanks to omeprazole (Prilosec), and an anti-nausea drug, and severely limiting my diet, it seems to be getting better. What relief! The constant nausea (with some vomiting) and stomach pain has been so horrible. But on the bright side, I have been losing weight. This isn’t exactly the weight loss plan I had imagined for myself, however. Another good forced diet change: no Diet Coke or caffeine!

And in GOOD NEWS, I went on my first bike ride a couple days ago! I had to make a few stops and take breaks (I’m weak from sickness and not eating hardly anything and not exercising all winter), but it felt so good. It was a lot colder out today so I chickened out, but I hope to go on another ride very soon.

Prednisone free!

I’ve been off of prednisone for THREE DAYS now! Whooo!

Three days isn’t long, but it’s exciting nonetheless. Let’s hope I can continue to stay off of it.

Goodbye, chubby round face. Goodbye, neck lump. Goodbye, anxiety and mood swings. Goodbye, bone damage.

GOODBYE!

Countdown!

PREDNISONE TAPERING COUNTDOWN DAY…?

I’m not sure what week/day I’m on except that I went down to 7 mg at the start of this week. HOORAY! I WILL reach 0 soon. Staying at 0 is the main goal, though, and that tends to be tricky.

Milligram by milligram I will get off of this drug. Then the next hurdle–tapering off the Xanax and Vicodin. I’m not looking forward to that. I’m actually really nervous of withdrawal/tolerance side effects, but I know I can do it.