Today is Day 1 of me taking 1mg of prednisone! I almost hate to celebrate because I know how likely it is to be suddenly forced to have to increase the dose of this nasty drug. But, I will celebrate a little. I can’t remember the last time I’ve been at only 1mg, and it’s taken seemingly forever to taper down this far from 5mg. It is a very difficult process: bit by bit, milligram by milligram, flare-up by flare-up. So far today I’m enduring this minuscule decrease fairly well. We’ll see what tomorrow brings, however.
I WILL be prednisone-free again someday. I swear it! Let’s hope it’s this month.
RheumatoidArthritis.net article: “Nothing is Lost Forever”
Nothing is lost forever.
In this world there’s a
kind of painful progress,
longing for what we’ve left behind,
and dreaming ahead.
–Tony Kushner, “Angels in America”
Are you a “morning person,” or do you absolutely dread and loathe mornings, like I do? No matter how early I go to bed or how much sleep I get, I always have a hard time getting up in the morning and I rarely feel well-rested. Or rested at all. I was just reminded of this when an article I wrote a few years ago for RheumatoidArthritis.net popped up in my Facebook feed:
I wrote this article when I first started substitute teaching and I was working at a long-term job subbing for a kindergarten class. Even though the article is now a bit old, my feelings about mornings remain pretty much the same. I hate them! I wish I didn’t, but I do. Nevertheless, I’m often forced to drag my stiff, painful body out of bed at an early hour, but THANK GOD FOR COFFEE!
Also, if you’re interested, please “like” and follow RheumatoidArthritis.net on Facebook! They have lots of great articles posted from several different patient advocates living with RA on a huge variety of topics.
Check it out here: facebook.com/RheumatoidArthritisDotNet
Thanks for reading and have some GOOD mornings!
I’ll still be in bed.
The “opioid crisis” is something that affects my life every single day, as it does for many other chronic illness patients I know. Here’s a recent article I wrote for RheumatoidArthritis.net about this issue once again: “Just Add Exercise?”
Sadly, with all of the misinformation out there regarding opioid medications for chronic illness patients (well, any patients), I know I will continue writing about this subject. So many patients who take and need these medications are suffering great harm due to the continually increased restrictions on them. And these are patients who take opioids responsibly, safely, as-prescribed, and under the care of a physician (such as myself).
STOP THE STIGMA: chronic pain patients are NOT addicts!
Two days ago I did my third Simponi injection since starting the drug in April. So far, so good; I haven’t had any reactions or side effects or problems from it. And, the injection itself is almost painless, which is a very pleasant surprise, compared to the severe stinging of Enbrel and Humira. I don’t even have to ice my leg or stomach before doing the shot!
But, is it working? No, not yet, I don’t think. My rheumatologist told me that it can take three months at minimum to possibly begin working, and longer than that, more likely. So here I am at month three, pretty desperate for it to start doing its magic. It’s been about five years now, and several failed biologics, since my RA has been stable and well-controlled on a biologic (Remicade). I’m so ready for this to work!
Here’s an article I wrote for RheumatoidArthritis.net about starting my 8th biologic medication: “Starting Simponi”
Thanks for reading!