In case you don’t know, today, October 12th, is World Arthritis Day. It’s late afternoon right now in Minnesota and the day is nearing its end, however I didn’t want to completely forget or ignore this day. Other RA friends and acquaintances of mine have been posting stuff all day long on their blogs and social media pages about how arthritis affects their lives. Regarding my own RA story, I recently (well, three months ago) reached an important milestone: the 20th anniversary of my RA diagnosis. I wrote an article for rheumatoidarthritis.net about it, if anybody would like to read it. Click on the link below to read a bit about what it feels like to have RA for 20 years.
I just posted this all over my social media pages yesterday because I love it! Having RA and an invisible illness, this statement really resonates with me. I often struggle with feeling “lazy” (and then guilty) just trying to make it through each day living with this exhausting disease. I’m NOT lazy, though. None of us are. We’re doing the best we can while living with constant, debilitating pain. That should be enough.
This is happening tonight! Very soon, actually. Join us on Twitter in about 30 minutes if you can! We’ll be chatting about making decisions about treatments, preparing for doctor appointments, and getting involved in healthcare policy work.
My Twitter handle is @aclundberg (if you don’t already know!). See you online soon!
Once again I can’t believe how long it’s been since I posted on here and how fast the time is speeding by. Can everything slow down a bit, please? Even though I haven’t been posting on this blog that much lately, I’m still keeping busy updating my RA Facebook page–“Inflamed: Living with Rheumatoid Arthritis” (like this blog)–and writing for RheumatoidArthritis.net. If you’re on Facebook, please check out and “like” my page! I’d love to have you there. I do plan to start posting a lot more on this blog, too.
In other news, I started another new biologic medication this spring, Rituxan, and my rheumatologist and I are now waiting to see if it’s going to work. I really hope it does because I’m running out of biologic options–which is worrying. I’m also desperate to finally get off of prednisone (and stay off it) after taking it regularly for about three years.
Here’s a recent article I wrote about starting Rituxan for RheumatoidArthritis.net: “Rituxan Ready?”
In exciting/wonderful news, I’ve recently lost about 9 lbs! This makes me so happy and relieved because I feel like I’ve been trying to lose weight forever, and nothing seemed to be working. I’m glad to find out that my body and metabolism isn’t totally broken/defective. Whew.
How’s your summer going? How’s your RA? The heat and humidity drive me crazy and make my RA (especially swelling) a lot worse. If this also happens to you, I hope you can find a way to stay cool and comfortable right now. I’m sick of breathing in central air conditioning day after day, but I’d rather do that than be miserable and in worse pain.
I really need a relaxing beach vacation, I’ve decided.
The article is my take on what has been the seemingly growing trend of bigger and bigger smart phones and how that affects people with RA. Basically, the larger phones hurt my hands, so I’m ecstatic to discover that Apple has a new SMALLER iPhone available now. I’m an Apple person and I want to stick with iPhones (for now), so this is great news.
However, I recently got a comment on the article from someone disagreeing with me on my opinion of smaller smart phones being better for RA. She made some good, interesting points that I’m going to respond to right now, actually! What do you think?