Oh the weather outside is frightful (as “springtime” usually is in Minnesota), but my joints feel so delightful. Well…maybe not delightful, but I’ve noticed that they’re definitely a lot happier and manageable during cold, dry weather. The heat and especially the humidity of summer greatly increases my pain, swelling, and, well, RA discomfort and misery. I know that I’m probably a bit of a weirdo and in the minority for preferring cold weather instead of warm/hot weather for my RA, but I can’t be the only one–right?
I’m really sick of seeing snow and especially in April. Yes, we still have snow here in the frozen tundra of Minnesota; I’m looking at the disgusting stuff right now through the window as I write this. I desperately want sunshine and green grass and no more cold, gray, and snowy days. I just wish my RA liked summery, warm weather too.
In case you don’t know, today, October 12th, is World Arthritis Day. It’s late afternoon right now in Minnesota and the day is nearing its end, however I didn’t want to completely forget or ignore this day. Other RA friends and acquaintances of mine have been posting stuff all day long on their blogs and social media pages about how arthritis affects their lives. Regarding my own RA story, I recently (well, three months ago) reached an important milestone: the 20th anniversary of my RA diagnosis. I wrote an article for rheumatoidarthritis.net about it, if anybody would like to read it. Click on the link below to read a bit about what it feels like to have RA for 20 years.
Once again I can’t believe how long it’s been since I posted on here and how fast the time is speeding by. Can everything slow down a bit, please? Even though I haven’t been posting on this blog that much lately, I’m still keeping busy updating my RA Facebook page–“Inflamed: Living with Rheumatoid Arthritis” (like this blog)–and writing for RheumatoidArthritis.net. If you’re on Facebook, please check out and “like” my page! I’d love to have you there. I do plan to start posting a lot more on this blog, too.
In other news, I started another new biologic medication this spring, Rituxan, and my rheumatologist and I are now waiting to see if it’s going to work. I really hope it does because I’m running out of biologic options–which is worrying. I’m also desperate to finally get off of prednisone (and stay off it) after taking it regularly for about three years.
Here’s a recent article I wrote about starting Rituxan for RheumatoidArthritis.net: “Rituxan Ready?”
In exciting/wonderful news, I’ve recently lost about 9 lbs! This makes me so happy and relieved because I feel like I’ve been trying to lose weight forever, and nothing seemed to be working. I’m glad to find out that my body and metabolism isn’t totally broken/defective. Whew.
How’s your summer going? How’s your RA? The heat and humidity drive me crazy and make my RA (especially swelling) a lot worse. If this also happens to you, I hope you can find a way to stay cool and comfortable right now. I’m sick of breathing in central air conditioning day after day, but I’d rather do that than be miserable and in worse pain.
I really need a relaxing beach vacation, I’ve decided.
Yesterday I had my first iron IV infusion since last December because my hematology labs are still abnormal; my hemoglobin is 10-something. I’ve been dealing with anemia or borderline anemia ever since my RA diagnosis 18 years ago, I think. During all of those years I knew my anemia was somehow related to RA, but it’s not until just recently that I started doing some research on it.