For a while I was trying to cross-post some of the articles I’ve written for Rheumatoidarthritis.net but I realize I haven’t done that lately. So, if you’re interested, here’s a fairly recent one that I like:
It’s about being diagnosed with RA at age 18, and sort of teetering on the edge of being a child or adult patient and the issues that came with that. Loneliness is a major “side effect” of having this often misunderstood disease, and I believe it’s even worse when you’re young and living with it.
I saw this written in graffiti on the side of a building one day when I was riding the subway in November. I wished I could’ve taken a photo of the original, but instead I grabbed my little notebook out of my purse and scrawled this down quickly.
To whomever wrote this quote, I thank you. It’s beautiful, much appreciated, and often times quite needed.
Today is Day 1 of NO DIET COKE. And Day 1 of actively working on my New Year’s resolutions–or “intentions”–as I wrote about them in a recent article on RheumatoidArthritis.net.
I wrote about five main ones, but there are so many more. Maybe I should start a blog about resolutions and how many I can actually fulfill? Hmm. Not a bad idea although it could prove to be quite depressing when I resolve to, say, reply to all of my e-mails one day and instead wind up on the couch watching a marathon of The Love Boat. Um, not that I’ve done this before, of course.
But today, I did not drink one single can of Diet Coke! What did you do or not do?
Most everyone has a “brick wall” (or two or 10, maybe) that can get in the way of fulfilling dreams and goals and living the life you want. I’ve been thinking about my own brick walls lately, thanks to one of the classes at the high school where I substitute teach. In this class we watched a video of Professor Randy Pausch’s: “The Last Lecture: Really Achieving Your Childhood Dreams.” If you haven’t seen it yet, I highly recommend checking it out, as well as reading his book, also titled The Last Lecture. Pausch was such an intelligent, creative, passionate, and down-to-earth person, dedicated to helping others–especially his students. I’m a few years late discovering him and his lecture, but I’m so glad that I finally have.
I recently wrote a longer post on RheumatoidArthritis.net about Pausch’s lecture as well as the struggles I’ve faced dealing with my own brick walls in life–such as living with RA.
I went up north (northern Minnesota, for those of you not familiar with the “up north” expression) this last weekend for an annual family event/get-together. The weather was mostly cloudy and rainy which is a major departure from the usual scorching, unbearable heat that happens that July weekend. I stayed with my cousins, aunt and uncle, and some other family friends in an old farmhouse just outside of the town of Osakis. Even if the weather wasn’t perfect, I just loved getting out of the city for the weekend and away from the stress of “normal life.” I’ve always fantasized about living in a small town or out in the country for a summer, and I still think about it. Would I really like it? I know it seems like I’ve been doing a ton of traveling over the last few months, which is true. But I still feel like I need some sort of vacation. I feel like I can think about things so much easier and clearer when I’m away from home. And really, I need to focus and start making some major decisions here. I’m tired of floundering around, feeling like I don’t know what the hell I’m supposed to be doing, or how to do it. Although it is admittedly difficult to stay on track with things when your life is constantly being interrupted and derailed by chronic illness and everything that goes along with it (flare-ups, doctor appointments, physical therapy appointments, sickness, fatigue). But anyway — this post doesn’t have much of a point, I guess, except that it was good to get away, and I would like to go back to Osakis again before the end of summer. Realizing the things that make you feel good and better is an important part of healing and managing your health, I think. I don’t know why it’s such a struggle sometimes.
So I stayed up all night working on this photo project, which is crazy, but I couldn’t sleep anyway. As you may (or may not) know, one of my passions in life is photography. The physical demands of it are often very difficult due to my RA (carrying heavy equipment, standing on my feet for hours), but I still have the drive and desire to keep doing it, for some reason. Anyway, there is a cool thing going on through the local public television station here, TPT (Twin Cities Public Television), called Capture Minnesota. And today is the deadline to enter photos of Minnesota for the Capture Minnesota II photo book. I’ve been digging around in my computer all night trying to find some of the best photos I’ve taken of Minnesota over the last couple years. I think I found some good ones, so if you feel moved to do so, please vote for them. I’d really appreciate it!