I’m still here!

Hello! I can’t believe how long it’s been since I’ve posted on here. Very embarrassing. So many things have happened regarding my health, work, family, and friends since November. There’s a lot to catch up on and I am going to do it!

Right now, I’m going through a pretty bad flare-up in both feet and ankles and a bit in my hands. The feet/ankles flare started about a week ago and then got quickly worse while I was in Chicago last weekend for a wonderful conference called HealtheVoices. I will write more about that very soon, I promise! Despite suffering through the staggering physical and emotional pain of the flare, I was so inspired and energized being a part of the conference again (I was at the first one held last year in Jersey City, NJ). Just being there with my fellow RA friends and advocates as well as connecting with people who are advocates regarding other chronic illnesses…it was incredibly motivating and empowering. But more on that later! Know that there are a lot of people out there who really care about those who live with RA and are passionate about making lives better. This gives me great hope.

This post is a bit rambling and scrambling, but I wanted to post something now. Finally! I’m still here and this blog and cause are still so very important to me. They always will be. :)

I hope you’re all happy and as pain-free as possible out there…in the Internet universe.

Helpful or hurtful?

Here’s one of my latest articles from RheumatoidArthritis.net, if you’re interested. It’s a bit of a sad one, unfortunately. But I’m happy to say that I’ve met some wonderful new friends since this was written!

“Helpful or Hurtful?”

I find the older one gets, it’s harder and harder to make friends. Especially good friends. Making new friends and nurturing good relationships while having a chronic illness is even harder, I would argue. But not impossible!

Caught in the lonely gap

For a while I was trying to cross-post some of the articles I’ve written for Rheumatoidarthritis.net but I realize I haven’t done that lately. So, if you’re interested, here’s a fairly recent one that I like:

“JRA vs RA: Caught in the Lonely Gap”

It’s about being diagnosed with RA at age 18, and sort of teetering on the edge of being a child or adult patient and the issues that came with that. Loneliness is a major “side effect” of having this often misunderstood disease, and I believe it’s even worse when you’re young and living with it.

My heart is proud of its pain

proudpain

I saw this written in graffiti on the side of a building one day when I was riding the subway in November. I wished I could’ve taken a photo of the original, but instead I grabbed my little notebook out of my purse and scrawled this down quickly.

To whomever wrote this quote, I thank you. It’s beautiful, much appreciated, and often times quite needed.

Happy New Year!

dietcoke

Today is Day 1 of NO DIET COKE. And Day 1 of actively working on my New Year’s resolutions–or “intentions”–as I wrote about them in a recent article on RheumatoidArthritis.net.

I wrote about five main ones, but there are so many more. Maybe I should start a blog about resolutions and how many I can actually fulfill? Hmm. Not a bad idea although it could prove to be quite depressing when I resolve to, say, reply to all of my e-mails one day and instead wind up on the couch watching a marathon of The Love Boat. Um, not that I’ve done this before, of course.

But today, I did not drink one single can of Diet Coke! What did you do or not do?

Here’s the article if you want to read it:

“New Year’s Intentions”

I hope everyone has a VERY HAPPY New Year and that you will find success and joy following through with your own Intentions for 2015!