New Facebook page!


So this is exciting–I just created a Facebook page for “Inflamed!” Please “like” it if you’re interested and feel free to share it with others (so I feel like I have more than two friends, ha). I’m really looking forward to connecting with more people in the RA and chronic pain and illness communities via Facebook and sharing dialogue/stories/photos/tips/etc.

Check it out!


Meds, oops

1mgsSo this is what it looks like when you run out of 5 mg tablets of prednisone. Luckily I still had enough 1mg pills, but this is not really my preferred way of doing things. Sometimes it’s just hard to stay on top of all of this stuff, you know? Since this photo was taken, I did manage to get a refill for the 5’s. Whew.

Friday: Attack of the giant ankle(s)

RAankleHere is a photo of last Friday’s very swollen ankles–especially the right one. Ouch. I have to say, the heat and humidity of summer in NYC is quickly becoming my enemy. Sitting at a desk all day at a temp job doesn’t help the swollen feet/ankles problem either. Luckily there is this wonderful little invention called ICE. After sitting on this step for a few minutes after work, dreading the rush hour subway ride back to Brooklyn from crazy Midtown, I did finally hoist myself up and limp down into the subway. As soon as I got home you can be sure that I strapped my ice pack onto that annoying ankle. I posted this photo on Facebook not long after I took it, complaining in a half-joking manner about how much I missed my pre-RA cute and skinny ankles (ankle bones even visible back then!). My cousin wrote back, “At least you’re wearing cute pants!” Yes, that’s true. Cute pants do help. Whatever makes things a little bit better, right?

So have a great day, stay cool, and wear some cute pants! Hang in there, everybody. Summer can be tough.

Caught in the lonely gap

For a while I was trying to cross-post some of the articles I’ve written for but I realize I haven’t done that lately. So, if you’re interested, here’s a fairly recent one that I like:

“JRA vs RA: Caught in the Lonely Gap”

It’s about being diagnosed with RA at age 18, and sort of teetering on the edge of being a child or adult patient and the issues that came with that. Loneliness is a major “side effect” of having this often misunderstood disease, and I believe it’s even worse when you’re young and living with it.

“Inflamed” named one of Best RA Blogs of 2015

rheumatoid-arthritis-bestGood news! My blog was named as one of Healthline‘s Best Rheumatoid Arthritis Blogs of 2015. I’m slide #4 on the list:

Thank you so much to everyone who reads my blog and supports me and what I do! I’m forever grateful for the wonderful friends I’ve met through my little blog and for being part of the online RA and patient advocacy communities.

HealtheVoices advocates!

HealtheVoices 2015 Conference – patient advocates! Jersey City, NJ, April 18, 2015

And in good news…here’s an awesome group photo of us HealtheVoices patient/health advocates with a gorgeous view of Manhattan in the background. What an inspiring group of people! Can you spot me?

(Hint, I’m short)