Focus Pointe Global RA opportunity

Hello again, my fellow RA-ers (and anybody else who reads this blog)!

I recently found out about a research opportunity for people living with rheumatoid arthritis that I thought I’d share with you. The company is Focus Pointe Global, which is a National Medical Research Company. I’ve actually participated in one of Focus Pointe Global’s RA studies myself and it was a positive, worthwhile experience. I’d definitely work with them again in the future.

Here’s more info:

Focus Pointe Global is currently looking to speak with people living with Rheumatoid Arthritis for an upcoming research opportunity. There are no sales involved and all information collected during the research process will be kept confidential and used for research purposes to help those in the healthcare field better understand the needs and challenges of living with RA.

By participating, you will be able to give direct feedback to professionals that can actually make a difference. Participants will be compensated for their time and efforts. This opportunity is available nationally.

If you are interested, please click this link, sign up, and fill out the short survey and you will be contacted within the next month: Focus Pointe Global RA Study

If you have any questions, please email:

medconditions@focuspointeglobal.com

Good luck and please feel free to pass along this information to others who might be interested in participating!

Catch-up: Joint Decisions/ACR/etc.

ACR15

Where does the time go? Seriously. So much has happened just within the span of a few weeks, but in a way it feels much longer ago than that.

OCTOBER: In late October I flew to New Jersey to participate in an advisory panel for a pharmaceutical company. It was a one-day consulting job, but I found it to be very professional, interesting, and a great chance to discuss RA and RA-related issues with others who are involved in rheumatology and healthcare.

After New Jersey, I decided to swing over to NYC for a brief visit (since I was in the neighborhood), and I had a wonderful time staying with my friend Holly in her little apartment in Hell’s Kitchen, Manhattan. It felt both odd and good to be back in New York, after I had to leave it so miserably and abruptly at the end of August. This time, I didn’t want to leave.

NOVEMBER: A week after I returned from NJ/NYC, I found myself on a plane yet again (I’m usually not such a jetsetter), this time heading to San Francisco for the annual Joint Decisions Empowerment Summit. This year it was actually held in Sausalito, which proved to be a perfect and beautiful choice for a location. The summit was excellent, as it was last year in Boston, and I will write a more in-depth update about that soon.

The last day of our Joint Decisions summit, most of us RA bloggers/activists traveled over to San Francisco to attend the American College of Rheumatology‘s annual meeting/conference. This was my second time attending and experiencing ACR, and wow, yet again I was impressed at its massiveness and global importance in the field of rheumatology and healthcare.

So right now, I’m desperately trying to play catch-up in the other areas of my life: work (substitute teaching, writing, photography), family, and my health.

Helpful or hurtful?

Here’s one of my latest articles from RheumatoidArthritis.net, if you’re interested. It’s a bit of a sad one, unfortunately. But I’m happy to say that I’ve met some wonderful new friends since this was written!

“Helpful or Hurtful?”

I find the older one gets, it’s harder and harder to make friends. Especially good friends. Making new friends and nurturing good relationships while having a chronic illness is even harder, I would argue. But not impossible!

ABC News arthritis Twitter chat TOMORROW!

So I just got an email from someone at ABC News about an arthritis Twitter chat happening TOMORROW with moderator Dr. Richard Besser, ABC’s chief health and medical editor. ABC News is looking for people to discuss all aspects of arthritis: symptoms, treatment, etc. And they want to hear from researchers, clinicians, bloggers, and patients.

DETAILS

Tuesday, July 21st
1-2 p.m., ET

Chat hashtag: ‪#‎abcDRBchat‬
Moderator @abcDRBchat

Here’s also a link explaining more about how to join the chat: Dr. Besser’s Live Twitter Chat.

**The video on the link isn’t about the arthritis chat specifically. But the instructions of how to join one of Dr. Besser’s chats is explained below the video. You can use that information to join the arthritis chat tomorrow.

Please join the chat if you’re interested and pass along the info to others. I’ll be there, tweeting! Look for me at @aclundberg