February 13, 2015
I just want to say…I really love giving all of my money to Fairview Health Services for my primary care. I mean, they deserve it. They always answer the phone right away and get me in for appointments quickly. They are so fast and efficient at RETURNING phone calls too, it’s amazing. I never have to call multiple times and repeat myself to several different customer service representatives/nurses/who-the-hell-knows-who-I’m-even-talking-to. No, of course not. If I call and leave a message for a nurse to call me back, she doesn’t forget me and ignore my message(s) and then never return my call until I have to call again, repeatedly taking up more time and effort and energy from my day(s). They are so considerate and on top of things and that’s why I happily give them large sums of my hard-earned money.
The nurses also never get any of my information wrong, like the medications I’ve had in the past, the history of my health issues, nor do they ignore the fact that I have a chronic illness–which makes primary care a bit more of a challenge than care for your “normal,” usually-healthy person. No, no–Fairview staff understand this and treat me with consideration and respect whenever I’m dealing with an additional illness or extra pain on top of living with the miserable symptoms and frustrations of RA.
So, let’s see here: I’ve had to go to my primary care clinic and urgent care 4-5 times within the last month, I think. Each visit costs me approximately $175.00 out of my pocket. I’d stop and do the math right now but it seems like a large enough amount and Fairview deserves as much as they can get for their excellent care, of course. So why even keep track? You know, I could probably start writing out insanely large checks each month or just send them my credit card to give some of their staff bonuses (especially the CEOs and Administrators) to help encourage and ensure the continuation of such personal, patient-driven, and fantastic care.
Might as well, right?
February 3, 2015
I’ve been having a flare-up for the last three days or so in both feet and ankles, hands, and my right wrist. My shoulder too, I think (sometimes it’s so hard to tell which pain is which). And, in great frustration (and pain), I’m out of pain medication. Once again these new, stricter FDA regulations on narcotics are causing me additional and unnecessary suffering. And I know I’m not the only one.
So, sorry for complaining, but I think this issue needs to be talked about. I’d also like to point out that if I had easier access to pain treatment (which is obviously legitimate and not abusive), I would not be missing work this week. I’m losing. My bank account is losing. Society/the economy is losing. And my sweet kindergarten students are losing their teacher.
Here’s a good opinion piece I read today from The Boston Globe by Donald N.S. Unger:
This hits home, unfortunately.
September 23, 2014
Apparently everyone in the health care field is incompetent today. About to go punch out someone at Target pharmacy right now.
January 30, 2014
I’m a girl you can’t shut up! –said musician/artist/Riot Girrrl/feminist/activist Kathleen Hanna. And I’m really glad that she doesn’t shut up. I recently wrote a blog post for RheumatoidArthritis.net about a wonderful documentary I saw last month called The Punk Singer (2013), which is about Kathleen and her contributions to feminism, the riot girrrl movement, music, and the world in general–as a creative and empowered woman. You should definitely check it out; it’s not out on DVD yet (March, I think), but it’s still showing in some cinemas. The documentary also reveals Kathleen’s struggles with a serious, chronic illness, which came as a surprise to me.
Here’s my blog post regarding my thoughts about the documentary, Kathleen Hanna, and my own passion for becoming involved with advocacy work:
I hope you like it! And again, please see The Punk Singer if you can. It’s great.
September 13, 2013
The Upper Midwest Region chapter of the Arthritis Foundation is having its annual ARTHRITIS WALK tomorrow morning, and I’m excited to be taking photos of it again. I also decided at the last minute to join my friend’s team, The Young Adults, and participate as a walker and fundraiser in addition to taking photos. This walk is always a fun event and it’s inspiring to see how supportive people are of the arthritis cause — whether contributing donations, walking in the event, or just cheering others on.
Here is my personal fundraising page for the walk if you would like to support the walk and make a donation to the Arthritis Foundation:
Here’s the link for the home page of the event, which has a lot of general information about it:
Thank you so much!
August 28, 2013
A new RA website is officially launching TODAY – RheumatoidArthritis.net
It’s a cool site, full of information about rheumatoid arthritis for patients, families, spouses — everyone really! A great part of this site is there is a community of bloggers sharing their personal stories of living with RA. And the exciting thing is, I’m going to be one of their featured regular bloggers! So now in addition to blathering on about medical appointments and swollen joints on this blog, you can read my posts over at rheumatoidarthritis.net too. Whoo! Actually those will probably be a little more organized structurally. And maybe more well-thought-out. Although I do try to not sound like a blubbering idiot on here, too, I swear. Ha ha. In any case, I hope you like the new site and my blog posts.
So check it out! It’s a neat site and I think it will be a helpful resource and source of communication and community for people affected by RA.
May 2, 2013
I meant to post this last week but time got away from me, it seems. Funny thing, I received this “threatening” collections letter the day I had my last Remicade treatment – which is also the day I read a really fascinating Time magazine article titled, “Bitter Pill: Why Medical Bills are Killing Us” by Steven Brill. It’s from Time’s March 4, 2013 issue and I luckily found a copy at the clinic so I snatched it up to read while being hooked up to my Remicade I.V. for three hours. Good decision! Although after reading the article (and in the middle of reading it), I became so infuriated and upset, because much of what Brill writes about has affected my life in similar ways. Unfortunately you have to pay to read the article online, but it’s really worth it. Everyone should read it – especially if you go to the doctor often, have a lot of medical expenses, or have any kind of health condition.
The article profiles several different patients and tells their stories about how they racked up huge medical bills, mostly from hospital expenses. Whether a cancer patient, an ER patient for heartburn thought to be a heart attack (and a $21,000 bill for that), the recipient of an overpriced implanted medical device, or a patient injured from a simple fall, one thing is constant in all of these stories – everyone was drowning in thousands, even hundreds of thousands of dollars of medical bills. And the majority of the medical costs of these bills were grossly inflated and overpriced. Luckily I have managed to stay out of the hospital so far this year, but since January 1 I have accumulated a lot of medical debt due to doctor office visits, MRI and X-ray scans, prescription drugs, and expensive I.V. treatments for my RA. Let’s also add the bills for my psychologist appointments that I find necessary to help me stay sane trying to navigate all of this health crap on a daily basis. I feel like I’m going to the doctor all the time, even when I sometimes do cancel appointments (especially the therapy appointments) just to save money. Or I try to hold off on making appointments until after I’ve met my deductible and out-of-pocket maximum for the year. I’ve heard stories from many other people who also go without their medications, treatments, or doctor visits because they can’t afford it. This, I feel, is simply wrong. Nobody should have to sacrifice his or her health because of financial reasons. But the way our healthcare system is set up, that is exactly what patients are pressured to do if they can’t afford their medical bills. Go into massive debt? Declare bankruptcy? Lose your house? Risk your life? It’s such a racket, with your dollars lining the pockets of the CEOs and administrators of many health care and hospital systems – especially these so-called “nonprofit” hospitals that are actually making huge profits.