July 20, 2015
So I just got an email from someone at ABC News about an arthritis Twitter chat happening TOMORROW with moderator Dr. Richard Besser, ABC’s chief health and medical editor. ABC News is looking for people to discuss all aspects of arthritis: symptoms, treatment, etc. And they want to hear from researchers, clinicians, bloggers, and patients.
Tuesday, July 21st
1-2 p.m., ET
Chat hashtag: #abcDRBchat
Here’s also a link explaining more about how to join the chat: Dr. Besser’s Live Twitter Chat.
**The video on the link isn’t about the arthritis chat specifically. But the instructions of how to join one of Dr. Besser’s chats is explained below the video. You can use that information to join the arthritis chat tomorrow.
Please join the chat if you’re interested and pass along the info to others. I’ll be there, tweeting! Look for me at @aclundberg
June 30, 2015
So this is what it looks like when you run out of 5 mg tablets of prednisone. Luckily I still had enough 1mg pills, but this is not really my preferred way of doing things. Sometimes it’s just hard to stay on top of all of this stuff, you know? Since this photo was taken, I did manage to get a refill for the 5’s. Whew.
June 14, 2015
For a while I was trying to cross-post some of the articles I’ve written for Rheumatoidarthritis.net but I realize I haven’t done that lately. So, if you’re interested, here’s a fairly recent one that I like:
It’s about being diagnosed with RA at age 18, and sort of teetering on the edge of being a child or adult patient and the issues that came with that. Loneliness is a major “side effect” of having this often misunderstood disease, and I believe it’s even worse when you’re young and living with it.
April 24, 2015
Good news! My blog was named as one of Healthline‘s Best Rheumatoid Arthritis Blogs of 2015. I’m slide #4 on the list: http://www.healthline.com/health-slideshow/best-rheumatoid-arthritis-blogs#4
Thank you so much to everyone who reads my blog and supports me and what I do! I’m forever grateful for the wonderful friends I’ve met through my little blog and for being part of the online RA and patient advocacy communities.
April 24, 2015
And in good news…here’s an awesome group photo of us HealtheVoices patient/health advocates with a gorgeous view of Manhattan in the background. What an inspiring group of people! Can you spot me?
(Hint, I’m short)
April 24, 2015
I’m in Brooklyn, New York right now, trying to figure out what the hell I’m doing. And why I’m doing it again. I had a really awful day yesterday, mostly because of my health insurance company in Minnesota admitting that they gave me completely WRONG information regarding me having health coverage here in New York City. It’s a long story and I’m too tired to go into it now, but basically I’m stranded here without health care. And my rheumatologist in Minneapolis is in China now for two weeks, so it’s pretty difficult to reach him. I’m working with his nurse though. Hopefully another doctor can help me.
So, ah, just saying hi from New York. I’m alive…barely! ha ha. Prayers, good thoughts, etc, are very welcome right now. I need them. I was crying my eyes out for hours yesterday. :(