Caught in the lonely gap

For a while I was trying to cross-post some of the articles I’ve written for Rheumatoidarthritis.net but I realize I haven’t done that lately. So, if you’re interested, here’s a fairly recent one that I like:

“JRA vs RA: Caught in the Lonely Gap”

It’s about being diagnosed with RA at age 18, and sort of teetering on the edge of being a child or adult patient and the issues that came with that. Loneliness is a major “side effect” of having this often misunderstood disease, and I believe it’s even worse when you’re young and living with it.

4 thoughts on “Caught in the lonely gap

  1. Hi Angela, I haven’t been diagnosed with RA, but when the doctors were getting me ready for my first cortisone shot I heard one of them say “do you think RA?”. I’m going to my primary doctor today, and I have been feeling unwell for about a half year. I have been to specialists, and I feel like everyone thinks I am a hypochondriac, nobody listens to me or takes me seriously! I am at my wits end

  2. New to your blog and this is the first post I really looked at. I was diagnosed at almost 16, just a bit too old for a standard JRA diagnosis and severe enough that they diagnosed me as an adult. Couldn’t find a rheumatologist within 100 miles that would treat me because I was too old for the pediatric rheumatologists and too young for many of the adult ones. I have talked to a lot of people with this disease and you are honestly the FIRST person I have every seen express this issue, something I acutely felt in high school and college. THANK YOU!

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