About a month or so ago I began participating in an ongoing patient research study about RA called YourCareMoments. How it works is I basically fill out a short survey after each time I see my rheumatologist or get RA prescriptions filled at the pharmacy or have any kind of RA-related treatment. The feedback from the surveys is then used by YourCareMoments to help inform pharmaceutical companies about what’s going on with patients who have RA–their experiences and opinions regarding doctor appointments, getting their RA medications, starting new medications. I do receive a small monetary compensation each time I complete a survey (about $6-7 per survey), which is nice, but what I really like about the program is that pharmaceutical companies are getting feedback directly from the patients who use their products. I think this is one good way to help bridge the gap that exists between patients and the huge pharmaceutical industry (which often has a bad reputation for not being very patient-friendly).
The pharmaceutical companies need to hear from patients and hear what the experiences are in their daily lives living with RA. Because RA is such an unpredictable and ever-changing disease, and it’s very specific from person to person, I believe it’s important for as many voices to be heard as possible, and that’s why I support this program. I want pharma to know what it’s like when I have my rheumatology appointments. I want them to know the hassle I sometimes have trying to get certain medications. They need to know that access to care and treatment and medications is often very difficult for RA patients. So! I want to let you, my readers, know that I’m participating in this program and I would like to extend a friendly invitation to anybody else who has RA who would also like to participate. So far I’ve had nothing but good experiences taking the surveys and working with YourCareMoments. It’s easy, convenient, and fast–I recommend getting involved if you have a few extra minutes to spare each week/month.
You can register to start receiving surveys by going here:
Please contact Keith Olsen (who is extremely nice and helpful!) if you have any questions about participating:
Here are some quick facts and FAQs about the YourCareMoments program:
Zitter Health Insights is a specialized business intelligence firm that provides insights to biopharmaceutical manufacturers and health insurance companies related to the affordability of and access to medications. The project, YourCareMoments, provides insights into consumer habits, decisions and health care experiences. This is done through short online surveys that are sent to registered patients. Once they register, emails are sent with links to participate in the surveys. Surveys average about 5-10 minutes to complete and participants are paid per survey. The surveys can be completed on your computer or mobile device. YourCareMoments keeps in contact with each participant over time to follow when he/she will next see a doctor or pick up a prescription in order to survey the participants while the information is still fresh in their minds. Also, these are anonymous surveys so the patients never need to worry about their identities being shared–they will never be asked for their names or addresses.
How long are the surveys?
Surveys average around 5-10 minutes for completion.
How much money do participants make?
The amount of money earned depends on the type and length of the survey. Patients/registrants are informed how much each survey will earn before they take a survey.
What does YourCareMoments Insights do with the research?
The research is received and analyzed by YourCareMoments. The data is then sold to bio-pharmaceutical companies to help them gain insight to patient healthcare experiences, opinions and habits.
Is YourCareMoments contracted with any pharmaceutical companies?
YourCareMoments works with pharmaceutical companies, but they are not working directly for any specific company or drug.
Will YourCareMoments ever sell or share email addresses?
YourCareMoments will never sell or share participants’ email addresses, and they ensure that all information participants share is safe.
How are participants paid?
Because participants are never asked for names and addresses, they are paid via PayPal within 2-3 business days.
What are some of the questions in the surveys?
Examples include: What medications are you currently taking for your medical condition? Did the doctor prescribe you any new medications or increase your current medication dosage during your visit? Please describe your level of satisfaction with the amount of information provided about your new prescription, etc.
Who can sign up for the program?
Participants must be 18 years or older and living in the United States.