Countdown!

July 22, 2014

PREDNISONE TAPERING COUNTDOWN DAY…?

I’m not sure what week/day I’m on except that I went down to 7 mg at the start of this week. HOORAY! I WILL reach 0 soon. Staying at 0 is the main goal, though, and that tends to be tricky.

Milligram by milligram I will get off of this drug. Then the next hurdle–tapering off the Xanax and Vicodin. I’m not looking forward to that. I’m actually really nervous of withdrawal/tolerance side effects, but I know I can do it.

GOOD NEWS

July 16, 2014

Good, exciting things are starting to happen just recently! But I’m going to leave it at that until things are confirmed. One of those good things I will say right now is that I’m down to taking 10 mg of prednisone. I’ve been SLOWLY tapering down from 30 mg since April. This makes me very happy and I hope I can continue tapering each week until I’m off of this dreadful medication.

Hooray, 10 mg! Sometimes it’s slowly, step by step, that things get better. And I always must keep reminding myself of this, especially during those times when it feels like nothing will be better again.

Hold onto hope.

An inconvenient FLARE

April 17, 2014

ankle2

But aren’t they all inconvenient? I’m sorry I haven’t posted in such a long time. This winter in Minnesota (and other parts of the world, I know) has been brutally depressing, and I basically haven’t felt well throughout most of it. As I sit here writing this, I’m looking out my window at SNOW covering everything. We got dumped on yesterday and last night, which isn’t helping my mood or physical state of being. I’m bummed out, I’m stiff, I’m achey, I’m anxious, I hurt all over.

Anyway, I’m currently in the middle of a pretty bad flare-up. My stubborn right foot and ankle have been in intense, swollen, throbbing pain all week. The left ankle is also flaring up but not as bad as the right one (which is its usual pattern). I’m also taking 30 mg of prednisone, which is making me feel sluggish and bloated and agitated and mental and everything that wonderful prednisone likes to do to a person. I think it’s helping, a little. I hope it will hurry up and knock out this inflammation ASAP though. I’m supposed to drive six hours south to Omaha this weekend to spend time with friends I haven’t seen in a while, but I don’t see how I can do that with my inflamed foot. Driving only irritates it more. Not happy.

So, to sum up–winter came back last night and dumped a load of snow and misery on my street. RA came back this week and dumped a load of inflammation on my feet. I’m pretty pissed off about both things. Hopefully there is a silver lining to this, somewhere. There must be, right?

Rollercoaster

February 15, 2014

Well, I’m taking prednisone again–10 mg. I’m not happy about being back on it, but at least it’s helping.

Damn foot and ankle.

HOORAY!

January 20, 2014

Hooray, hooray, HOORAY! I’m off prednisone as of TODAY! Cross your fingers this lasts a while. Or, forever.

UPDATE 1/25:
Sadly, it could not last. Back on 5 mg. :(

Tape my mouth shut, please

January 12, 2014

steroids2

So I’m back on prednisone, which is annoying. Right now I’m taking 10 mg, but I was taking 15 mg for a couple weeks. About a month ago a pretty bad flare-up started in both feet and ankles–especially the right foot and ankle. Swelling and terrible, throbbing stabbing pain. I’ve been trying hard to resist taking steroids because of their nasty side effects, and because I’ve been trying very hard to lose weight. But, once again I felt I had no other choice than to take prednisone temporarily until the flare-up is gone. The drug has been helping, which is great, but it’s also been affecting my moods and causing me to have a raging, ravishing appetite. I want to stuff my face with every carb I see, basically. This is frustrating and depressing.

I wrote more about this in a blog post for RheumatoidArthritis.net which hasn’t been published yet (soon, hopefully). In it I ask for tips and suggestions about how to cope with the side effects of prednisone. How can I control my appetite better while taking this wonderful yet awful drug? I’ve been trying to drink a lot of water and tea which is helping, sort of. I’m not sure what else to do other than, yeah, taping my mouth shut. But when a pasta/bread/sugar/chips craving pops up, I’m not sure if I could stop myself from ripping it off anyway. Lock me in a closet instead? Chop off my hands? Joking aside, those aren’t realistic options, of course. Anybody have any good ideas? Please tell me soon, before I clean out the fridge…again.

Cooler weather, happier me

September 11, 2012

Palmer Lake, Minnesota, September 2012

It’s getting to be mid-September already and the weather has been cooler and less humid. However today it was a bizarrely balmy 95 degrees. What? Crazy Minnesota weather, I guess. Fall is my favorite time of year anyway, but I love it even more because the drop in temperature and humidity makes my body and aching joints feel so much better – especially my stubborn right ankle. Since returning from my trip to Europe a month ago, I admit I’ve been having trouble staying energized and motivated to get my life together and to get back on track with health stuff (diet, exercise, weight loss, doctor appointments, ankle). However, I did go on a long bike ride around Palmer Lake a couple days ago – twice around the trail! So that’s about eight miles total. My hardcore bicycling friends would probably find that distance rather wimpy, but it was the first time I ever did that, so I was pretty happy and proud. But, um, I haven’t been on my bike since then. Er. TOMORROW! I just can’t ride my bike or do any kind of exercise in 90 degree heat, and I think that’s understandable.

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