February 22, 2011
Sorry, I know I forgot to post yesterday. However it was a strange Monday which felt more like a Sunday, so…ah, yeah. I also didn’t get out of my pajamas all day (lazy). Surprisingly my work was closed due to a crap-load of snow we just got Sunday and yesterday. I’m so sick of this weather. CABIN FEVER. Will Spring ever come? I am growing more and more doubtful. And restless.
In RA news, my right hand and wrist are starting to flare up. I’m a few weeks overdue for my Remicade infusion, so maybe that’s why. I just scheduled my Remicade appointment for Friday afternoon, so it will be good to get that over and done with until the next appointment in April. Not surprising, but I also found out recently that PANF (Patient Access Network Foundation) is currently out of funds, so after this infusion Friday I will have to pay all out-of-pocket costs for my future Remicade infusions unless they get more money. This is worrying, but it has happened and worked out in the past so I hope by the time I need another infusion they’ll have more funds for RA. I just can’t afford to pay $1,000 every two months for one medication.
TONIGHT is Week Two of the karaoke contest at Grumpy’s. The theme this week is “the 70s” – I think I’ll be singing Hanging on the Telephone by Blondie and Heroes by David Bowie. KARAOKE MANIA! When my RA or the weather or any other little stupid thing is getting me down, it’s always really great to get together with friends. I can’t wait for tonight. Hope I don’t bomb.
January 24, 2011
I dragged myself out of bed and rushed around the house like a maniac trying to get out the door and to my doctor appointment on time this morning. I had an appointment with my rheumatologist for which I had been waiting three months. So I sped over to the clinic, nearly ran a couple blocks and then raced into the office not wanting to be too late (I am always late…for everything). Well, lucky me, I was indeed far from late. Standing at the check-in counter like an idiot the woman told me that my appointment is TOMORROW morning. Oops. Me: “ha ha ha ha…uhhh…ok, I’ll….uh…see you tomorrow.” Duh.
So yes, now TOMORROW morning I have my rheumatology appointment along with an appointment with my endocrinologist right after that. If I’m late tomorrow I’m going to punch myself in the face.
In other news, I had a pretty good weekend. I went to see The King’s Speech which was fantastic. Sunday I puttered around in my pajamas all day drinking tea, watching public television, and playing Scrabble like an old lady. Last night I made a fool out of myself singing karaoke with my “karaoke krew,” which is always pretty awesome. I screwed up singing “Maps,” which my friend then aptly referred to it as “Craps” for the rest of the night. It was really good to get out and have a fun night at the Vegas again like old times.
RA update: Still off caffeine and prednisone (YES!). Joints feel pretty good, which is a wonderful feeling.