An inconvenient FLARE

April 17, 2014

ankle2

But aren’t they all inconvenient? I’m sorry I haven’t posted in such a long time. This winter in Minnesota (and other parts of the world, I know) has been brutally depressing, and I basically haven’t felt well throughout most of it. As I sit here writing this, I’m looking out my window at SNOW covering everything. We got dumped on yesterday and last night, which isn’t helping my mood or physical state of being. I’m bummed out, I’m stiff, I’m achey, I’m anxious, I hurt all over.

Anyway, I’m currently in the middle of a pretty bad flare-up. My stubborn right foot and ankle have been in intense, swollen, throbbing pain all week. The left ankle is also flaring up but not as bad as the right one (which is its usual pattern). I’m also taking 30 mg of prednisone, which is making me feel sluggish and bloated and agitated and mental and everything that wonderful prednisone likes to do to a person. I think it’s helping, a little. I hope it will hurry up and knock out this inflammation ASAP though. I’m supposed to drive six hours south to Omaha this weekend to spend time with friends I haven’t seen in a while, but I don’t see how I can do that with my inflamed foot. Driving only irritates it more. Not happy.

So, to sum up–winter came back last night and dumped a load of snow and misery on my street. RA came back this week and dumped a load of inflammation on my feet. I’m pretty pissed off about both things. Hopefully there is a silver lining to this, somewhere. There must be, right?

Update

April 3, 2012

Palmer Lake, Minnesota

Spring is here and change is in the air, it seems. Lots of things are happening right now – good and bad. My long-term temp job at Fairview just ended last Friday so now I am unemployed again. I have a few job applications in the works, so hopefully I’ll get some good news regarding those. My RA has been flaring up out of control over the last few weeks – my ankles are really painful. I’ve been taking 20 mg of prednisone and it doesn’t seem to be working, so I’m really worried. The doctor’s office is supposed to call me back today sometime. Still waiting. My knees and hands have also been bothering me somewhat so it seems RA is probably the culprit regarding my ankles. My surgery ankle (the right one) has been especially painful. I’m almost tempted to wonder if something else is wrong with it. The D.C. trip is coming up in two weeks and I just hope and pray that my ankles will calm down significantly by then. My remicade infusion is scheduled for Friday so I hope this flare-up will get better once I have that.

Good news – Despite the current flare-up, I’ve started riding my bike again! I rode around Palmer Lake (about three miles) two nights ago and it felt really good to just be outside and getting exercise. My goal is to try to go on a bike ride at least once a day, even if just for a short ride. I want so much to be healthier and to lose weight. I know I can do it if I work hard enough. Sticking with healthy eating and exercising is the challenge though. Cutting out Diet Coke again is another difficult challenge. Ugh.

Taper time

February 4, 2012

A lot has been going on lately with my RA and I really haven’t wanted to talk or write about it. But, I suppose I should give some sort of an update. I’m still on the evil prednisone, but I’m starting to taper down as of today. I saw my rheumatologist last week and he increased the dose to 20 mg (I think I was on 10 for a week or so) for a week and then told me to call him, which I did yesterday. My flare-up has definitely improved since starting the prednisone again but I’m still having pain in both ankles. After speaking with my doctor’s nurse yesterday afternoon, she relayed the message that I’m supposed to start tapering down to 15 mg for four days, then 10 mg for four days, then call the office again. She said that since I haven’t seen a lot of improvement increasing to 20 mg that I should start to taper down. That’s certainly fine with me – I hate being on the stuff. However I’m willing to put up with prednisone’s nasty side effects or just about anything else to make the flare-up and pain go away. My Remicade I.V. infusion was also last Friday so hopefully that will start to kick in.

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JAM 2011

March 28, 2011

All of the kids wearing black t-shirts have arthritis

Sorry it’s taken me so long to post about JAM, but I’ve been dealing with a particularly painful flare-up for the last few weeks.  My right wrist was especially bad, which made typing difficult. GOOD NEWS – the flare-up is much better!  And, I didn’t have to go back on prednisone.  I just kept trying to eat healthy, stayed off caffeine, took fish oil capsules consistently, and tried to get more sleep.  With this mysterious disease, who knows really why the flare-up occurred and/or why it’s now better.  I wish I had some answers instead of guesses.  I’m so happy to not be in such pain anymore though – I hope it lasts.

Here are a few photos that I took at the Juvenile Arthritis March (JAM) at the Mall of America March 5th.  It was my second year photographing JAM for the Arthritis Foundation and it proved once again to be an excellent event.  My only complaint is that I feel I maybe got better photos last year.  For some reason, the Arthritis Foundation had TWO additional people taking photos.  These two girls really got on my nerves by the end of the walk because they kept jumping in front of me “stealing” my shots.  I don’t know why three people were needed to take candid shots.  But anyway, it was a great experience again and really inspiring to see all of the people who participated in the walk and who raised money for the Arthritis Foundation.

If you’re interested, you can see more photos on the Arthritis Foundation’s Shutterfly site:  http://arthritisfoundation.shutterfly.com

The kids loved watching the band Koo Koo Kangaroo perform onstage

Relief

March 25, 2011

I’m so happy.  This flare-up seems to be getting better and WITHOUT being on prednisone!  I could cry I’m so relieved.  I hope it will totally go away.  I think I’ve lost a tiny bit of weight, too.  Patience is very difficult sometimes.

I’m having a flare-up now for seemingly “no reason.”  Both ankles, knees, hands and feet are really hurting.  I DO NOT WANT TO GO BACK ON PREDNISONE! Hopefully if I drink more water, lay off the caffeine again,  and get more sleep ASAP this will get better.  Otherwise I really have no clue why this is happening now other than my body wanting to be a huge jerk.  Do you ever find yourself silently urging RA to just leave you alone?  I’d love it if it would take a damn break once in a while.  I’m so crabby.  Go away, pain.  Go away.

Here comes the sun?

February 22, 2011

Snowstorm, 2/20/11

Sorry, I know I forgot to post yesterday.  However it was a strange Monday which felt more like a Sunday, so…ah, yeah. I also didn’t get out of my pajamas all day (lazy).  Surprisingly my work was closed due to a crap-load of snow we just got Sunday and yesterday.  I’m so sick of this weather.  CABIN FEVER.  Will Spring ever come? I am growing more and more doubtful.  And restless.

In RA news, my right hand and wrist are starting to flare up. I’m a few weeks overdue for my Remicade infusion, so maybe that’s why.  I just scheduled my Remicade appointment for Friday afternoon, so it will be good to get that over and done with until the next appointment in April.  Not surprising, but I also found out recently that PANF (Patient Access Network Foundation) is currently out of funds, so after this infusion Friday I will have to pay all out-of-pocket costs for my future Remicade infusions unless they get more money.  This is worrying, but it has happened and worked out in the past so I hope by the time I need another infusion they’ll have more funds for RA.  I just can’t afford to pay $1,000 every two months for one medication.

TONIGHT is Week Two of the karaoke contest at Grumpy’s.  The theme this week is “the 70s” – I think I’ll be singing Hanging on the Telephone by Blondie and Heroes by David Bowie.  KARAOKE MANIA!  When my RA or the weather or any other little stupid thing is getting me down, it’s always really great to get together with friends.  I can’t wait for tonight.  Hope I don’t bomb.

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